Family Support and Urology Patient Resources

How do we support patients with urologic conditions and their families?

Our goal is to provide family-centered care that improves the health and well-being of patients and families. At Children’s Hospital Colorado, you’ll find timely and appropriate pediatric urology family resources to help you and your child when you need it the most. The resources and conveniences we provide are available to you as a patient of the urology department at Children’s Hospital Colorado.

We help your child feel safe, comfortable and supported

The team in the Department of Pediatric Urology knows the importance of taking your child’s feelings and privacy into consideration during testing and treatment. Our support staff provides emotional, therapeutic and educational support to children and family members as part of medical visits. As part of this support, you may see a psychologist or child life specialist during your next visit to the Pediatric Urology department at Children’s Colorado.

Support groups for patients, parents and siblings

Support groups help you and your child feel like you’re not facing medical and emotional challenges alone. Our support groups provide the opportunity to connect with others like yourself. Parents, kids and siblings all benefit from these unique groups.

Mitrofanoff ACE Support Education (MASE) Group

The goal of the MASE group is to form a community that supports and educates families on the care of ACEs (antegrade continence enema) and Mitrofanoffs.

Who should attend?

Parents, patients and siblings are invited to participate in the MASE group. Each meeting includes separate groups for parents and kids.

What happens at the meetings?

The MASE support group for children includes age-appropriate activities and programming that encourages participants to have fun and meet other children going through similar experiences. The parent group allows parents to gain new knowledge and get support from other parents caring for children with ACEs and Mitrofanoffs.

Who runs the meeting?

The MASE group is facilitated by nurses, psychologists and child life specialists that have training and expertise in the care of children with ACEs and Mitrofanoffs.

When does the MASE group meet?

The groups meet three to four times per year. For information on when the next group meets, please contact the urology department.

Sexual Development Outcomes – Achieving Results (SOAR) Group

The goal of the SOAR group is to provide a supportive community for families with children with differences of sex development (DSDs).

Who can attend?

Parents, patients and siblings are invited to attend the SOAR group. The team at Children’s Colorado values the privacy of individuals with DSDs, but we also believe there is a benefit to meeting other patients and families. Some parents may decide to attend without their children for the first time; others bring their entire family.

What happens at the meetings?

Most meetings allow for parents, patients and siblings to meet in a relaxed atmosphere to connect with other families going through similar experiences. Other meetings are educational opportunities for families to learn more about DSDs.

Who runs the meeting?

The SOAR group is facilitated by a psychologist and several clinic volunteers who are personally affected by DSDs.

When does the SOAR group meet?

The group meets six to seven times per year. For information on when the next group meets, please contact the urology department.

The team in the Department of Pediatric Urology is always looking for ways to support our patients and families. If you have ideas about additional support groups, please contact our team at urology.urology@childrenscolorado.org.

A place to stay while you visit

The Ronald McDonald House Charities of Denver is a home away from home for families with children being treated at Children’s Colorado. Full kitchens, bedrooms and lounges with TVs create a place for families to relax.

Contact us

Phone: 720-777-3926 
Fax: 720-777-7370 
Email: urology.urology@childrenscolorado.org